Hi there, just looking for any more feedback or info on silver shield natural remedy? wondering if anybody else uses it and if so is it on an ongoing basis and any opinion, thoughts feedback to of...
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So I am new to this, my daughter is only six months old. I recently attended a CF family night where the president of the CF foundation came and spoke. It was very interesting and gave me quite a ...
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Hi all, this came up for me a little over 18 months ago where the dr I was seeing thought I had CF. At the time I was diagnosed with type one diabetes but she thought the way it came on was more l...
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Hi, this is my first time posting. I have a five and a half month old daughter with CF. We go to the CF clinic every three months, but we have also started to see a nationaly certified naturopathi...
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Hi there! My 20 month-old daughter has had frequent respiratory issues and was finally given the diagnosis of asthma about 2 weeks ago. When the MD told me we needed to test for CF, I went onlin...
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Hi, I have seen alot of parents recommending people get the genetic test done to make sure because sometimes the other tests can come back negative. I was just wondering, is it a blood test? and...
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Can LPN's (LVN's) administer meds through a PIC Line?
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Hi, my name is Dianna and I have a 10 month old little girl. Ever since she was 3 weeks old she's had problems on and off. She had a very mucousy nasal passage to the point where she couldn't br...
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My daughter was just tested at childrens hospital in milwaukee...We went because of a sweat conductivity of 57 (which is equivalent to a sweat chloride of 42). She is continously sick with resp. ...
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Hello-
I am desperate for info about mutatuion P5L- my newborn son is going through CF tesing and it has been determined through genetic sequencing that he has both the delta 508 mutaion and a 2...
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I am having a bunch of neurologic symptoms. My neuro asked me if CF was in my family. A great-aunt had 3 children with it, so he is very interested in looking into that now. I am 35. What are ...
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I have a 17 month old daughter who weighs 18 pounds and was recently in the hospital. She was diagnosed with broncialitus (spelling?) and failure to thrive. All of her stool tests came back negati...
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Hello,
My 1 month old son's Newborn Screening test came back positive for Cystic Fibrosis. The letter sent to us by the state of NY states that an Immunoreactive Trypsin (IRT) >=Top 5%=107.2,...
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My daughter has had various symptoms....growth issues, ravenous appetite without gaining weight, a nose that is always running for over a year....sometimes not so much.....sometimes gunky and wors...
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I have trouble remembering to do my pep or I cheat and dont count and say I'm done when I am really not. (I am 13 btw) What should I do?
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My daughter has been doing pretty well recently...no major lung issues, stool seem pretty "normal" ( I guess...large and mushy but no crazy colors)....just a regular kid...no cough even....
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Does anyone have G542X gene
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Hello, All!
Five years ago my daughter was misdiagnosed with CF by an inexperience pediatrician. During that time period we met with local families who had family members with CF and went onl...
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what is considered a greasy stool in an infant
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Ok. I'm 19 years old, have never really had recurrent problems coughing up nasty phlem.. (It happens, but only if I'm sick, which isn't so often), never had pneumonia, and no breathing problems ot...
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Hi
I'm new to this site but God knows I'm not new to Cystic Fibrosis. I've never thought it would come to where I'm looking to talk to anyone who may be going thru what I am. unfortunately I kno...
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My daughter will be going to Children's hospital in Milwaukee the end of Feb. to have a sweat chloride test and see pulmonologist....something I've noticed is she has episodes of neon green poop.....
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How to get a 2 year old with CF to eat
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Hello..new here..my 2 1/2 year old with multiple health issues just had a sweat conductivity(nanoduct)with a result of 57..reference values are different than sweat chloride...anyone with experien...
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oh, sorry mistake.
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