My son is 5 months old with CF and has a respiratory rate of between 95-108 during the day. This can't be normal. It has always seemed fast to me since he has been born, but lately it ...
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Hi everybody, christmas wishes to you all with a new year that is filled with strength, health, luck and loving! thanks to everybody for their cyber ears these past months! :-)
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Well, I recieved all of my daughters results from clinic. All was well except that we will need to repeat her liver labs next time we go. Her AST enzyme was elevated, it was 52 and norm...
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We are new to all this. Our son has had 4 bouts of pneumonia over the years (not hospitalized), his left lower lobe of his lung removed at 2 for what they said was a birth defect ( bleed...
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This is first message board I have ever posted to- so forgive me as I learn. My 3 and 1/2 year old son, just tested one point over the borderline for CF. (For our tests this is a 71) He...
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I have a 14mo. little boy who is 18 pounds (gained less than a pound in the last 5 months). He is anemic and eats like a horse litterally a horse. He can eat almost adult servings at m...
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What does it mean when your right armpit swells certain times of the month then goes away but there is a soft swollen area on the outer side of the inside part of right armpit? It is kind of sof...
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Hi all, I am gutted this morning just been told dd has scanty growth of pseudomonas in her cough swab. all i've heard about pseudo is that it's the awful thing to get and it points to the child be...
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my 17 mo old has multiple allergies and is basically on a celiac/vegan but can have poultry kind of diet(to eliminate wheat and dairy and eggs from his diet). he eats lots of beans. i felt that du...
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My best friend has CF and a yr old son. Recently her health has deterioted so badly that she spent three weeks in hospital came out for a week and has had to go back in again. She says that she ca...
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my boyfriend who is 23 has cf, and i know stomach aches are apart of cf, but i was wondering if any of you out there have any remedies to lessen the pain of the stomach aches. so far we haven't tr...
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Hi all, hope you are all doing well, I've been mad busy and no net access so just back on now. my dd is doing good thankfully tho she did have a flu bug for which she was on antib's for 14 days. i...
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Are CF gene carriers thin? My husband and I are carriers (one defective gene) and we both are very thin. I'm saying very skinny. I was wondering if this is a trait.
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Hi
I'm new on this board. My 3 year old daughter was diagnosed 5 months ago. It has been really hard to learn she has CF after 2 years of not knowing what was wrong. It has been an emotional...
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my 12 year old daugher has asthma, and at a routine allergy test the allergist found nasal polyps in her nose. I took her for a sweat chloride test and she tested borderline, but they did not tel...
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I have a 17 month old with cf. She weighs 9 kilos, and it took us a while to get to that. Her weight has been all over the place, sometimes she would put on 250grams in two weeks then in the next ...
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Hi all! We are back from vacation and the 12 hour car ride was quite a challenge. Baby girl is coughing more frequently now. I think sitting still in the car could be part of it?? We took breaks a...
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Hi everyone. My baby girl is a tough one to figure out. When she first came home from the hospital she had one or two dry littlecoughs through each nite.
Cultures showed staph. After albuterol a...
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Hi there, just looking for any more feedback or info on silver shield natural remedy? wondering if anybody else uses it and if so is it on an ongoing basis and any opinion, thoughts feedback to of...
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So I am new to this, my daughter is only six months old. I recently attended a CF family night where the president of the CF foundation came and spoke. It was very interesting and gave me quite a ...
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Hi all, this came up for me a little over 18 months ago where the dr I was seeing thought I had CF. At the time I was diagnosed with type one diabetes but she thought the way it came on was more l...
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Hi, this is my first time posting. I have a five and a half month old daughter with CF. We go to the CF clinic every three months, but we have also started to see a nationaly certified naturopathi...
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Hi there! My 20 month-old daughter has had frequent respiratory issues and was finally given the diagnosis of asthma about 2 weeks ago. When the MD told me we needed to test for CF, I went onlin...
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Hi, I have seen alot of parents recommending people get the genetic test done to make sure because sometimes the other tests can come back negative. I was just wondering, is it a blood test? and...
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Can LPN's (LVN's) administer meds through a PIC Line?
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