Hi, my name is Dianna and I have a 10 month old little girl. Ever since she was 3 weeks old she's had problems on and off. She had a very mucousy nasal passage to the point where she couldn't br...
[Tags: No tags defined yet] - Be the first to Tag this threadAdd TagsCancel
*Note: Tags must be comma (,) seperated. For example: boardtracker, forum search, search engine
My daughter was just tested at childrens hospital in milwaukee...We went because of a sweat conductivity of 57 (which is equivalent to a sweat chloride of 42). She is continously sick with resp. ...
[Tags: No tags defined yet] - Be the first to Tag this threadAdd TagsCancel
*Note: Tags must be comma (,) seperated. For example: boardtracker, forum search, search engine
Hello-
I am desperate for info about mutatuion P5L- my newborn son is going through CF tesing and it has been determined through genetic sequencing that he has both the delta 508 mutaion and a 2...
[Tags: No tags defined yet] - Be the first to Tag this threadAdd TagsCancel
*Note: Tags must be comma (,) seperated. For example: boardtracker, forum search, search engine
I am having a bunch of neurologic symptoms. My neuro asked me if CF was in my family. A great-aunt had 3 children with it, so he is very interested in looking into that now. I am 35. What are ...
[Tags: No tags defined yet] - Be the first to Tag this threadAdd TagsCancel
*Note: Tags must be comma (,) seperated. For example: boardtracker, forum search, search engine
I have a 17 month old daughter who weighs 18 pounds and was recently in the hospital. She was diagnosed with broncialitus (spelling?) and failure to thrive. All of her stool tests came back negati...
[Tags: No tags defined yet] - Be the first to Tag this threadAdd TagsCancel
*Note: Tags must be comma (,) seperated. For example: boardtracker, forum search, search engine
Hello,
My 1 month old son's Newborn Screening test came back positive for Cystic Fibrosis. The letter sent to us by the state of NY states that an Immunoreactive Trypsin (IRT) >=Top 5%=107.2,...
[Tags: No tags defined yet] - Be the first to Tag this threadAdd TagsCancel
*Note: Tags must be comma (,) seperated. For example: boardtracker, forum search, search engine
My daughter has had various symptoms....growth issues, ravenous appetite without gaining weight, a nose that is always running for over a year....sometimes not so much.....sometimes gunky and wors...
[Tags: No tags defined yet] - Be the first to Tag this threadAdd TagsCancel
*Note: Tags must be comma (,) seperated. For example: boardtracker, forum search, search engine
I have trouble remembering to do my pep or I cheat and dont count and say I'm done when I am really not. (I am 13 btw) What should I do?
...
[Tags: No tags defined yet] - Be the first to Tag this threadAdd TagsCancel
*Note: Tags must be comma (,) seperated. For example: boardtracker, forum search, search engine
My daughter has been doing pretty well recently...no major lung issues, stool seem pretty "normal" ( I guess...large and mushy but no crazy colors)....just a regular kid...no cough even....
[Tags: No tags defined yet] - Be the first to Tag this threadAdd TagsCancel
*Note: Tags must be comma (,) seperated. For example: boardtracker, forum search, search engine
Does anyone have G542X gene
...
[Tags: No tags defined yet] - Be the first to Tag this threadAdd TagsCancel
*Note: Tags must be comma (,) seperated. For example: boardtracker, forum search, search engine
Hello, All!
Five years ago my daughter was misdiagnosed with CF by an inexperience pediatrician. During that time period we met with local families who had family members with CF and went onl...
[Tags: No tags defined yet] - Be the first to Tag this threadAdd TagsCancel
*Note: Tags must be comma (,) seperated. For example: boardtracker, forum search, search engine
what is considered a greasy stool in an infant
...
[Tags: No tags defined yet] - Be the first to Tag this threadAdd TagsCancel
*Note: Tags must be comma (,) seperated. For example: boardtracker, forum search, search engine
Ok. I'm 19 years old, have never really had recurrent problems coughing up nasty phlem.. (It happens, but only if I'm sick, which isn't so often), never had pneumonia, and no breathing problems ot...
[Tags: No tags defined yet] - Be the first to Tag this threadAdd TagsCancel
*Note: Tags must be comma (,) seperated. For example: boardtracker, forum search, search engine
Hi
I'm new to this site but God knows I'm not new to Cystic Fibrosis. I've never thought it would come to where I'm looking to talk to anyone who may be going thru what I am. unfortunately I kno...
[Tags: No tags defined yet] - Be the first to Tag this threadAdd TagsCancel
*Note: Tags must be comma (,) seperated. For example: boardtracker, forum search, search engine
My daughter will be going to Children's hospital in Milwaukee the end of Feb. to have a sweat chloride test and see pulmonologist....something I've noticed is she has episodes of neon green poop.....
[Tags: No tags defined yet] - Be the first to Tag this threadAdd TagsCancel
*Note: Tags must be comma (,) seperated. For example: boardtracker, forum search, search engine
How to get a 2 year old with CF to eat
...
[Tags: No tags defined yet] - Be the first to Tag this threadAdd TagsCancel
*Note: Tags must be comma (,) seperated. For example: boardtracker, forum search, search engine
Hello..new here..my 2 1/2 year old with multiple health issues just had a sweat conductivity(nanoduct)with a result of 57..reference values are different than sweat chloride...anyone with experien...
[Tags: No tags defined yet] - Be the first to Tag this threadAdd TagsCancel
*Note: Tags must be comma (,) seperated. For example: boardtracker, forum search, search engine
oh, sorry mistake.
...
[Tags: No tags defined yet] - Be the first to Tag this threadAdd TagsCancel
*Note: Tags must be comma (,) seperated. For example: boardtracker, forum search, search engine
Do any of you experience "fatigue attacks"? or have the need to take power naps during the day?
...
[Tags: No tags defined yet] - Be the first to Tag this threadAdd TagsCancel
*Note: Tags must be comma (,) seperated. For example: boardtracker, forum search, search engine
This is what my lifelong "overheating" episodes are like. I was wondering if any of these look familiar to you. All of the following happens instantly after exerting for a short period: ...
[Tags: No tags defined yet] - Be the first to Tag this threadAdd TagsCancel
*Note: Tags must be comma (,) seperated. For example: boardtracker, forum search, search engine
Do any of you have the following:
- severe surface and internal eye pain (and/or dry eye)
- head pain - pain meds are non effective
- eye floaters that came about suddenly
I've h...
[Tags: No tags defined yet] - Be the first to Tag this threadAdd TagsCancel
*Note: Tags must be comma (,) seperated. For example: boardtracker, forum search, search engine
Hi Everyone-
I am hoping someone can help me. My son had sinus surgery at the end of September to help reduce the junk in the sinuses and remove a polyp. Since the surgery he has had constan...
[Tags: No tags defined yet] - Be the first to Tag this threadAdd TagsCancel
*Note: Tags must be comma (,) seperated. For example: boardtracker, forum search, search engine
Clicking Noise in my head when I walk
...
[Tags: No tags defined yet] - Be the first to Tag this threadAdd TagsCancel
*Note: Tags must be comma (,) seperated. For example: boardtracker, forum search, search engine
My 2 year old had a "borderline" sweat test result yesterday - 54.... does this mean she has CF? Does it mean that there is actually a chance that she doesn't? Everything I read is so...
[Tags: No tags defined yet] - Be the first to Tag this threadAdd TagsCancel
*Note: Tags must be comma (,) seperated. For example: boardtracker, forum search, search engine
My wife and I are CF carriers. We started the process of PGD IVF and have just been denied the IVF portion by our insuance coverage because we are both fertile. We have blue cross blue sheild of M...
[Tags: No tags defined yet] - Be the first to Tag this threadAdd TagsCancel
*Note: Tags must be comma (,) seperated. For example: boardtracker, forum search, search engine
Browse sub-categories 
