When i was 15 i made friends with a guy with cf,we dated for a while but it diddnt work out so now were just close friends.We`ve always talked about his condition openly,he takes his meds infrotn ...
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My four year old just came back from the allergist doctor. They are wanting to test him for CF because they said his finger and thumb did not make a diamond shape when he presses his fingers toge...
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My son had two sweats done before he was one year old. The first test was 37 (boderline) and the second test was 23. He has chronic diareah with undigested food, foul smelling stools, and they a...
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I saw a bunch of postings on problems people were having getting their insurance to cover PGD. I just met with a fertility specialist yesterday. He seemed optimistic that because my husband and ...
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I was diagnosed with CF around the age of 35 or 36. I was told I have had it since birth but it wasn't diagnosed earlier. At the age of 14 I had horrible stomach problems very painful,accompanied...
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hi i was just wondering if there was anybody out there thats going through the same thing me and fiance are going through. im 18 weeks pregnant just found out a few weeks ago i tested positive for...
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Hi, this is my first time on the message board. I have a close friend with CF. He is 26 and has had to be in the hospital 3 times within the past year to receive antibiotics through a PICC line. T...
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My daughter Sarah 18 died 2 weeks ago from Wegeners Granulomatosis. A vasculitis which had attacked her lungs. She has an airway clearance vest which I would like to sell. It is model 104 and w...
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To anyone who can answer:
My niece turned thirty this past month. Three days ago she came to see me and said she had recently been diagnosed with cystic fib...
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Hi.I have been a little worried about my son.First off let me say his daddys brother died of cf when he was 12.
My son is little for his age,he is 27in,and 21 pounds he has gained weight slowly ...
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Ive seen it mentioned many times that a symptom of cf in infants is greasy bowel movements along with frequency, colour and foul smell.
Im curious exactly what does 'greasy' stool look like? ...
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My son will be 10yrs old this month and just went through two sweat tests. His first one should a borderline signs of CF I have not gotten the second test back yet. I was told that this sweat te...
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My daughter is going to undergo a sweat test for CF in a few weeks, and I'm not sure what to think. I have posted here before about her problems...multiple food allergies, eczema, polymorphic ligh...
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They are testing my daughter currently for cystic fibrosis. I know very very little about it. Could someone tell me some about it and what are the symptoms for it??? I Would REALLYYYY appreciate i...
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YooHoo? ............................
...
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Hello. Are there any teens with cf here?.. i hv cf. i went to the hosp on tuesday and they told me i had a lung infection (my right lower lung) and gave me tablets 4 it. im sick of all these table...
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Hi, everyone! I'm hoping someone out there has some advice. I'm 12 weeks pregnant and I learned a few weeks ago that I'm a CF carrier. I have delta 508. My husband had a more advanced screenin...
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Long story short-
I am positive for R117H mutation only. My husband had a neg test result using the smallest mutation panel. This was over 2 years ago and the doc said don't worry about it a...
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I am not sure how to ask this but I was wondering if any of your children have thick ear wax. When I try to clean Matt's ears it is like glue. Everytime I try to clean them he gets an ear infect...
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I've written before about our 17 month old son, who has chronic respiratory problems. While he doesn't seem nearly as bad as many of you describe your children to be, he has chronic wheezing, junk...
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I have a 2 month old son with CF and I have learned alot about it and I would like to shard my information with anymore that has questions so if you have one please ask and I will share
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Long story, so please, be patient. My son, now 5, was born with Transposition of the Great Vessels (a heart defect). He had heart surgery at five days old and was in the hospital for 20 days. W...
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Hi everyone-
I was just wondering if anyone's bloodwork ever showed a high C3D immune complex.
Thanks!
...
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Hey guys,
I'm only new and so I thought I'd post this and see what happened. Anyways here goes.
Is it only me or is there people out there with cf who like to exersize like a fanatic?
Is ...
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Hi, I was wondering if it was possible for someone with CF to have the pneumonia, wheezing, persistent cough, frothy mucus symptoms, but not have the bowel problems ...
Shannie is 3 and has be...
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