My son will be 10yrs old this month and just went through two sweat tests. His first one should a borderline signs of CF I have not gotten the second test back yet. I was told that this sweat te...
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My daughter is going to undergo a sweat test for CF in a few weeks, and I'm not sure what to think. I have posted here before about her problems...multiple food allergies, eczema, polymorphic ligh...
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They are testing my daughter currently for cystic fibrosis. I know very very little about it. Could someone tell me some about it and what are the symptoms for it??? I Would REALLYYYY appreciate i...
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YooHoo? ............................
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Hello. Are there any teens with cf here?.. i hv cf. i went to the hosp on tuesday and they told me i had a lung infection (my right lower lung) and gave me tablets 4 it. im sick of all these table...
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Hi, everyone! I'm hoping someone out there has some advice. I'm 12 weeks pregnant and I learned a few weeks ago that I'm a CF carrier. I have delta 508. My husband had a more advanced screenin...
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Long story short-
I am positive for R117H mutation only. My husband had a neg test result using the smallest mutation panel. This was over 2 years ago and the doc said don't worry about it a...
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I am not sure how to ask this but I was wondering if any of your children have thick ear wax. When I try to clean Matt's ears it is like glue. Everytime I try to clean them he gets an ear infect...
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I've written before about our 17 month old son, who has chronic respiratory problems. While he doesn't seem nearly as bad as many of you describe your children to be, he has chronic wheezing, junk...
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I have a 2 month old son with CF and I have learned alot about it and I would like to shard my information with anymore that has questions so if you have one please ask and I will share
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Long story, so please, be patient. My son, now 5, was born with Transposition of the Great Vessels (a heart defect). He had heart surgery at five days old and was in the hospital for 20 days. W...
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Hi everyone-
I was just wondering if anyone's bloodwork ever showed a high C3D immune complex.
Thanks!
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Hey guys,
I'm only new and so I thought I'd post this and see what happened. Anyways here goes.
Is it only me or is there people out there with cf who like to exersize like a fanatic?
Is ...
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Hi, I was wondering if it was possible for someone with CF to have the pneumonia, wheezing, persistent cough, frothy mucus symptoms, but not have the bowel problems ...
Shannie is 3 and has be...
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Does anyone know, before a baby would have been diagnosed, is there any history of irritabilty, crabby, short temperedness along with other symptoms of course. Just wondering if my sons temperme...
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I keep eading infants with cf tend to have "greasy" stools. My 8wk old has had very odd sools consistently since 2wks old. Now his growth as all but stopped and we're being talked to abo...
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I wrote previously (yesterday) about my son's work-up for CF. His sweat test was negative, so we're going to ask for a genetic profile. However, after reading through a bunch of the threads on thi...
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HI Everyoone-
The doctor is trying Matt on enzymes- I can't think of the name of them off hand- I think it starts with a C. He is supposed to take on capsule at each meal. Does this mean bef...
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Hi Everyone,
My 16 month old son had a sweat test done this morning. We already have the results back, and it was 12. This is good! However, after reading through the message boards, I got co...
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My son was born Septmeber 10, 2006 and almost imediatley after the birth the nursing staff noticed his stomach was distended and within a few hours after birth it was more prominent and brused loo...
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Hi all
I have allways enjoyed a few (a lot) beers on Fridays or Saturdays.
However my hangover is like sitting in the lungs, - its like i've poured beer down my lungs, 1-2 days after having ...
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I lsot my husband Ry to cystic fibrosis at the tender age of 31. In his memory, I started up a tshirt shop to raise money for the CF walk, and to find funny shirts for the CF community, who deserv...
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If there are so many mutations of CF, how effective is testing the parents to see if they are carriers? Couldn't the prenatal test miss many of the mutations?
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Hi all,
I hope someone can help.... my 10 year old nephew is in the hospital right now. He was diagnosed with CF at 8 months old. Long story short... in Sept. he hit his head and got a ...
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Hello,
I'm ** and I just want some people to talk to that go through the same thing I do.
...
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