Hi, I am new to this board, and I was wondering if anyone knew anything about this.... My son, who is turning 7, has CF, hydrocephalus, scoliosis(which is not changing or causing problems), and ...
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Ok...so I'm being sent to the Cleveland Clinic ( I live in Ohio) which is a couple hours from where I live because no local pulmonologist would see me because of my age (26) and possible diagnosis...
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Im 16 and she is 14 and I really love her with all my heart....Ive known her 2 years now, and I know you hear that sort of thing from stupid teenagers all the time but this is different....If it w...
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Hi and thanks for the replies. Well here's the news so far. I saw a family Dr. and he ordered a sweat test and is referring me to a pulmonologist. I haven't had the sweat test done yet but he said...
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hiya,
my 10 year old daughter grew B-Cepacia one year ago and was blasted with IVs however it never went away,
now one year on she still has a heavy growth of B but she has no symptons at all,...
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Hi everyone...my name is Amy and I'm new here. I'm 26 and currently pregnant. I have a family history of CF so my OB suggested carrier testing. Turns out that I am a carrier but he also said that ...
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Hi there, my dd with CF is now a year old and wants to eat ALL day. She is getting adequate enzymes and we have been working very closely with her dietician......her stools are pretty good and sh...
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Our 17 yr old CF son just had surgery to correct Pectus Caranatum ( pigeon breat ) Our insurance company calls it cosmetic & won't pay. It's not. Is there anyone out there that has has a ch...
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well......as some of you know i had my first appt last tuesday.....all the bloodwork, urine and pap was done as well as the first u/s although i was only 6 weeks at the time.
come back from lu...
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I have been sick since I was a small child, I am now 20 years old and in college. I have bronchitis at least once a month, have bad asthma, sinus/nasal polyps with recurrent sinus infections, dige...
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If there is anyone here with a young child with CF can you post what their symptoms were? And why they tested them. I am trying to figure out this. I don't know much about it but my daughter is 2 ...
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I didn't get any answers in the 'children's' section, so maybe I will have more luck here. My 12 year old daughter had high temperature, cough, and a whistling sound in her throat three weeks ago. T...
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My son was just diagnosed with the CF gene, but we cannot get him tested for CF now due to medical limitations. We were having him looked at for growth issues, and he has a persistent cough, so the d...
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I am new to the boards and excited to find a place where I can ask a few questions. My Ped. Gastro. office is incredibly busy and they don't care to divuldge too much info yet.
On the 27th of Mar...
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Just wondering what your toddlers do for CPT. Do you put them in any head-down positions, have you always done so, or at what age were you told to do so? DS is almost 22 mo. and from the beginning we ...
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Hello,
I could use some reassurance right now. My son who is 7 1/2 yrs old was dx with mild asthma 2 yrs ago. We use a inhaler and singular when needed. However lately his cough has me wondering if ...
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I tested positive for a carrier, but a mild mutation. I have a half niece with CF and she is about 11-13ish, not sure.
OBGYN wants dh to get the test to know and if so be prepared. (I'm 31wks p...
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New here...my name is Steph. My 5 yo daughter is having 2 stool tests done: fecal fat and pancreatic elastase-1. In some reading about them, it seems the tests results could indicate CF, anyone kno...
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I'm just sick of wondering what this could be.... i am always having mucus in my throat but the weird part is it wont come up good unless i hit my ribs or chest then it comes up good and sometimes it ...
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My son who is 3 has been unwell off and on since birth. He went unconcsious for 24 hours at a week old. Still don't know why. Couldn't breath properly at all as a baby. Always had a wet sounding chest...
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I’m with a company called Dawkins Productions and we’re creating a new web site for teenagers with CF. It will be like *******.com, but not only can you get to know other people, you can get health i...
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I was just wondering if anyone had a child who was not diagnosed at birth and had borderline sweat test what their child's history has been like? I did a post called "would you be suspicious&quo...
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Six year old daughters history:
2000 (born)
-ear infections(5x)
-reflux
-mucousy cough (tested for whooping cough)
-bladder infection
-bronchitis
2001
...
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My 5 y/o daughter has cystic fibrosis, which has caused mild lung disease and severe pancreatic insufficiency. She takes the maximum amount of enzymes (pacreacarb 16) for her weight (40lbs) and still...
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