I asked this question probably about 6 to 8 months ago. These aeroneb gos seem to be relatively new so I wasn't able to find much feedback on it other than a review on a website with asthma informatio...
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Hi Guys, about 7 months ago I posted here that I was going in for a lung operationsince it went down to about 80% for the second time. Anyway, the operation I was told was a success but the after effe...
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Hi, I have exactly the same Angiolipomas. When they first appear they are painful while growing, then they reach a level and stabilise. They all give me pain when I am more tired. An interesting obser...
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Hi all gr8 website
I am looking for some advice for a friend of mine. her little boy has CF and has recentley won a holiday to Florida! Trouble is he cant get any Travel Insurance or it is far t...
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Anyone had to do the 72 hr fecal fat test?...
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Hi Everyone,
I am new and was wondering if anyone can help me get some information. My son who is seven has had chronic sinus infections, ear infections and pnuemonias. He has had two negative s...
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Hi there, my name is Lisa. I have a 16 year old son with CF. He was diagnosed at birth, he had meconium ileus and was salty like crazy. We had to wait until he was 3 months old to get the sweat tes...
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Does anyone here with CF use oil of oregano? I read on another sight that someone with CF uses it and feels so much better. He coughs less and it has been keeping him healthy....
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Hi there, my dd is 8 months, diagnosed at birth and we are obviously interested in doing everything we can to keep her healthy. We have some relatives that would like to buy us an air purifier for Ch...
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I am new to this board, so any advice would be appreciated. My 19 month old son always seems to be sick, he has had numerous chest infections since he was 6 months old. Weight has always been averag...
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Hi, I used to post here awhile ago, but lost my name and password. Anyways, I have a 16 year old boy with CF and he found out today that he has diabetes.
Are there any of you out there that has e...
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My 3y/o DS has been on Ultrase for quite a long time. We use 2.5 caps on a spoonful of applesauce. I say this because not everyone on enzymes opens their capsules and sees whats inside.
I got a ...
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Well actually I posted a good while back. Since then Jaden was diagnosed with CF at 8 months and is 15 months old and doing well. Right now she has Pseudomona and I will be doing breathing treatments ...
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My son, almost 17 months, was diagnosed with reflux when he was a few weeks old. For many months now it hasn't been a problem. About a week or two ago once in a while he would have a "wet" b...
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I do my best to keep DS away from people who are sick. People who say they're getting over a cold, flu, strep... I just worry 'cuz my FIL has chronic sinus infections and is always coughing, sneezin...
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My 13 montho-old daughter is having trouble gaining weight. Her enzyme dosage seems to be good because she does not have any signs of malapsorbtion (gas, bloating, greasy stools) and she has been on ...
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Sure this has been talked about before. DS just got prescribed pulmozyme. His pulmonologist said all his patients who are on Tobi and have cultured pseudamonas A are all on it.
Just wondered a...
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Could delayed tooth development be a sign of CF? I know this sounds crazy but it is really bugging me. DS#2 is almost 2 (10/19) and he has only 6 teeth plus 2 that JUST broke surface. By this time ...
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I have 2 healthy children, and one on the way. I have a 1/2 neice with CF and so my OBGYN tested me for it. I"m a carrier and they want my dh to get tested for it. There is NO history of it in...
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My toddler is in the process of being tested for CF, among other things. Celiac's came back as negative (I know a false negative could still be a possibility) and aside from the absorbsion test which...
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My doctor game me a prescription for cachexon the new drug approved by the fda. But I can't find a pharmacy that can get it so my insurance will cover it. Does anyone know what pharmacy I could get it...
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I kinda just needed to vent this somewhere, sorry if it's not exactly on topic...
so I found out today from a friend of mine that I girl I've known for about 4 years now, died over the weekend. ...
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Anyone live in northern CA who likes the pediatric CF center they go to? I am looking for a good clinic for my son....
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Hi there,
Our 3 and a half month old DD was diagnosed by blood test with CF at birth. She had a visible meconium ileus for 4 straight months on ultrasound but it cleared itself up a month be...
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We recently moved to a new state and are going to a new CF clinic. At our old clinic our son saw Pulmo, GI, Resp, dietician, nurse, and social work. At our new clinic he only sees pulmo and dietician,...
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