I am a 42 year old male. I have been having pain and swelling in my left shoulder and chest area without any sings of trauma and it is definately not heart related, as well as weakness ...
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I had my muscle biopsy yesterday. I have to wait for the results, which I won't get until late January as I'm going away for two weeks early in January. The doctor told me he may not b...
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Hi,
I am new to the forum,I have read a lot of the post so far to try get a better understanding of MD.
I do not have MD myself it is my husband that has it.He was diagnosed in his e...
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the past week i have been waking up during the night with afwul pains in my legs especially the top left side of my left tighe and my elbows i am in agony in the morning, wat could it be?
...
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Hello
Can someone please advise me if blood circulation is one of the symptoms of LGMD.
I am 44yrs with LGMD, but I don't know what type it is. I use a wheelchair to get out and about. I am...
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Hey I am in Florida and my Medicaid funding is going to run out when I turn 21 on March 3rd, 2009. I am on a ventilator and get 100s of dollars worth the supplies through Medicaid as well as 24/7 ...
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First off I am very sorry to hear of some of the personal battles many of you face. Second off I am new to the disorder of Multiple Dystrophy (through a family member) and was wondering some rathe...
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I have a granddaughter age 2. When I seen her this summer she started lifting her rt cheek up to take a picture. Now she involuntarily does it while sitting walking etc. Today my daughter told me ...
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Hi everyone --
I was just curious about a couple of things, see if people have the same issue on one thing and if they know on the other!!
1) Do any of you find that once in a while, you ...
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Hi Everyone!
I am so glad to have found you!
I am 32 years old and was diagnosed with LGMD in 1997. I was ambulatory until 3 years ago. The reason I found you guys is because I am having ...
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I was diagnosed with fibromyalgia in '96. There was a test done recently that found 2 out of 63 people that were previously diagnosed with fms actually had Myotonic Dystrophy type 2. Since I had a...
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Anyone have this ? I mean a real shortness of breath upon NOT MUCH exertion at all. Simple simple things.
It's scary.
I'm beginning to wonder if I have asthma again.
I don't like t...
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I finally got my date for my muscle biopsy, December 11. They are going to do another EMG. I had one in September. I wonder if the first one is used as a base to see if there's been any change ...
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I really don't know where else to post this and I'm not really looking for answers, more of just a place to vent where people can understand what I'm saying and why.
Life is the way it is fo...
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My son has a type of limb girdle md, and his twin has no signs of having it at all. So, since you know where I coming from, I have a couple of questions. When where you diagnosed with MD? And h...
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Last year, my ophthalmologist told me that I have the type of cataracts that are normally seen in people with muscular dsystrophy. I'm 45 years old, and these cataracts were diagnosed back when I ...
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am in the middle of being diagnosed (biopsy showed ragged red fibers) and being sent to Atlanta to one of the best genetics in the nation so I'm told.
I've been sickly all my life. Stroke li...
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My son has beckers MD and needs a shower/toilet chair , is there any help with funds for this equipment.
Thank You
...
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I came across a press release today announcing the start of a phase I clinical trial for ACE-031, a muscle building compound. It is hoped that ACE-031 will increase muscle mass and strength in th...
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Hello All
I am 35 years old and have LGMD2E. My husband and I are trying to make a decision on whether or not to have a child. We have done extensive research, though there is not a lot of ...
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Freedom at last! I got my scooter 2 weeks ago today. We spent a few days deciding on the best transport method. I opted for a carrier platform with a built in ramp that hitches to the hitch on my ...
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Hello, I'm a newbie here.
I was diagnosed with Mitochrondrial MD back in 1993. I also have fibromyalgia and a few hundred other things....SMILE...ok..let's don't
I have been in a se...
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Hello,
I am new to this board and I am looking for advice with feeding issues. My son Preston is 5 yrs. old, he has had a g-tube for two years and we are tring to wean him off, he only had to u...
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Is there anyone that has C.M.T? I have had nine people in my family who have had this through the years.My sister and I are the only two left in the family with this hereditary disease. Hopefully...
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Hi all,
Anyone had a muscle biopsy with a needle? I'm just wondering what it will tell me. Will it confirm what I have? Still haven't an appointment. Did anyone do physio therapy for this? ...
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