Hi! I'm Wendy, mom of 2, and someone who is feeling lost and confused. I was diagnosed with CMT1A a little over 1 year ago. I am in a constant state of "achy to sharp debilitating" type ...
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My 16 year old daughter is probobly being diagnosed with, or as a carrier of MD.The doctors are still diagnosing her.We have an appointment to go see a neurolgist next month.My Question is what a...
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I'm Lucian and I'm 26 years old.
For about a year, ever since I finished with my stress/anxiety problems, I am left with a problem that is really giving me a lot of trouble.
It's about the leg mu...
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I have a question that i hope I can get some help with.
My G/F has been diagnosed with Chronic fatigue for a good few
years now.
recently her mother told her that her mothers cousins have MMD.
T...
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I have a question about my brother's illness. My brother has had muscular dystrophy for quite some time. He is on a bypap machine at night. My other brother has to help him in and out of the sh...
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My name is Lori. I'm 32 and am the sister of someone with myotonic dystrophy. Myotonic dystrophy isn't something is new to our family it has claimed the lives of 2 uncles, 1 cousin, my grandfath...
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I have a brother who has muscular dystrophy and is also on a bypap machine. The problem he has is that they had to move from the home they were living in which had a ramp built to get in and out ...
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My wife of 30 years, Addie Lee Alexander (the former Kay Ann Joncas), was killed in March by the administration of drugs that are not dangerous to most of us. My 911 call had saved Addie's life, a...
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Has anyone ever attended the MDA camp in Canton, MA?
I was a camper at the Oregon camp for ten years before moving to Rhode Island. They were some of the best times of my life, and recently I've ...
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To all of you with the twitching.
While I do agree self-daignosing is the worst thing to do - and I also thought I had every darn desease known , including MS. Finally after repeated MRI's and sti...
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Within the last few months, I have lost a lot of upper body strength, especially in my upper arms. I thought it was possibly due to a lack of exercise recently, but even with exercise and weights...
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Name: Tito Cabael
> Email: drftr@myway.com
> company: n/a
> Address: Jose Fabella Center DSWD-NCR Correctional Rd. Mandaluyong City
> Philippines
> Comments: Dea...
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i am a 21 year old female with myotonia congenita. i have never spoke to or even met someone else with this disorder. i have two children who also have this disorder, but they have not been diagnosed ...
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Has anyone ever been prescribed low dose oral chemo for ppms? My new doc just did and after reading side effects I am a little worried.
...
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Has anyone ever tried a low dose chemo oral pill for ppms? My new doctor just prescribed this and after reading side effects I am a little afraid! Thanks for any info
...
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I would love to hear from anyone with OPMD. HOw quickly did your symptoms progress, and what are your symptoms now? Have you found that any particular exercises have helped etc.? Any advice or inf...
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i have a seven year old son who may have a form of md they are thinking duschenes is there any one out there whos child has md can tell me some of the symptoms .my son has weekness in the trunk and ri...
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My husband has FSHD (diagnosed conclusively through DNA testing), and we want our 15mo. old son tested, but the insurance won't cover the test unless he has symptoms, which basically means they wo...
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My son is 14 and has some trouble sleeping. I was wondering what other parents do. We get up several times during the night to roll and/or turn him. Any suggestions?
...
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I was wondering if anyone here would know why an 8 year old would have an elevated adolase level but not enough to indicate MD? My son has had increasing trouble with joint pain and weakness in ...
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Does anyone out there have any information about Limbs Girdle Muscular Dystrophy?? This disease is inharent in my family.
Any reply would be appreciated.
...
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Hi
i have muscular dystrophy im wondering if anyone who is out there has the same conditions as me which is weak bladder muscles i cant seem to hold my wee when i have sex with my bloke ive tried ...
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Hello Everyone! http://www.healthboards.com/ubb/biggrin.gif
I found this site, liked what I saw, and decided to post a message.
I am 44 years of age, and have always had physical problems, limita...
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Hi,
I have a rare Muscular distrophy called Miyoshi Myopathy.
I want to know people who has similar kind of Myopathy.
Please reply.
Thanks
...
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