I had my appointment this morning. We talked about the hip pain and the weakness I am feeling. The appointment took longer than anticipated and she fell behind but didn't push me out the door. (...
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I know you are all telling me to go and get checked out! I agree. I will ask my family doctor this week when I see her. I hope to get some answers. I have been in such a bad mood and so rotten...
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Does anyone have any information on this drug?
I know its about to start trials in the USA for DM1, was hoping someone could shed some more light on this....
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The P.T. told me swimming is a good exercise for people with MD. BUT, not to over do it.--3 times a week for 10 minutes---well it took me 30 mins. to get there ,change, and get into the water. I ...
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Does anyone here experience issues with driving? (Mark?)
Over the past couple of years I have begun to have issues with operating the pedals. The fact that the brake pedal is at a different heigh...
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Tonight we went to see a movie. "Charlie Wilson's War". A great movie! We parked the car and headed in to the theater. There was a curb. I saw the curb but must have misjudged it!! ...
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I have thought about this quite a bit in the past few days (weeks and months actually). The first time I fell was on a visit to San Francisco. We were just touring the city and down I went. No ...
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Anyone know of a message board/chat room/forum/that deals with marital issues related to MD?
Having some issues here at home and could use some help! Any suggestions?
Thank you!
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Hi all, I have been lurking here for quite some time. I have read all the very informative posts. Thank you! I'm not sure where to start except to say that I am scared and don't know exactly w...
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My husband is 31 and was diagnosed almost two years ago with LGMD. Recently we were out at a chain family style Italian restaurant celebrating his birthday. My husband went to get out of his cha...
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Hello everybody!
I was diagnosed with LGMD 2B last year after a muscle biopsy. I also took a blood sample for a DNA test to confirm the diagnosis. After one year of waiting I finally got the r...
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Does anyone knows something about it.
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Had a fall last night in my kitchen. I didn't get hurt....just my pride and my confidence. And what a mess! I was getting the coffee pot ready for morning like I do every evening. I turned with a ...
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I've mentioned my CoQ10 regiment in various threads. I've been taking 400mg per day in the morning and around 1200mg if I "go out". I've changed this strategy just a bit.....
CoQ10 c...
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Does anyone else know about it?
I have had muscular dystrophy for over 7 years but it was confirmed 3 years ago after which seemed like millions of tests that I have "Miyoshi Dystrophy&qu...
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Hi all,
my name is Stipe (from Croatia). I have LGMD2A. Last week I found clinic in China who claim that they can cure MD with stem cell therapy. I have sent them an e-mail, asking about therapy...
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Hi everyone,
I live in Croatia, and I had very hard time to get my diagnosis confirmed. It took for about 10 years of wondering, changing doctors, surfing the web, etc. First they taught it was ...
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Can anyone with DM1 tell me if they have had hydrotherapy, and do you continue to get this from the NHS or have you had to go private to continue??
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A few months back - after multiple EMG's - my doc mentioned that he was pretty sure I had some form of MD. I then went to my next appointment, and the place was closed down. No notice, nothing. ...
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Can anyone help?
As a child I always had low blood pressure and hypoglyceamia. i was very active did sports etc, like most children, no problems - infact was quite good.
I believe when i was...
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I am a 22 year old male who as just been diagnosed with Bethlem Myopathy. I started noticing at the age of 17 something was wrong with my right hand. I was really clumsy dropping and braking th...
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why have i got pain and numbness in left side of my body?
why wont my middle finger on left hand stretch?
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When ever I get a chance, I look throught old posts. Mark B, you sure are knowledgeable AND helpful on here. Looking back, how old were you and what symptoms did you have? I"m talking about w...
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I have had sever back problems in my L1-L5 area of my spine since i was a kid, I'm 40 now. 18 months ago my L3-L4 and L4-L5 disce were 100% gone so I went to Alpha Klinik in Munich(i live in A...
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Has anyone tried creatine. My neurologist said I could try 4mg(I think) a day. He said it shouldn't hurt me and it might help the muscles from getting so weak!
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