Mark --
In a previous thread, you mentioned that you purchased an aluminum director's chair and that you just love it. I am interested but have a question for you.
Do you think it would s...
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Hey, just wanted to know how people get through the day because these days i am extremely tired all day and maybe have the odd hour im ok but i just cant be bothered with anything, i think i live ...
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My sons girlfriend is pregnant and she is the carrier her bother has a severe form of Duchene MD they have all tests done but we a very confused does this mean the baby will have DMD or are the ch...
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Does anyone else here experience muscle aches sometimes with their MD? I'm beginning to wonder if there is something else going on rather than this being a part of MD. I was just curious if anyo...
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Hi all,
I am new to this message board. I have BMD and have had a genetic test done which confirmed a deletion mutation of the dystrophin gene. I read the MYO-029 trial info. Hopefull...
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My husband has dysfarin muscular dystrophy and driving with foot pedals has recently become a real problem. I'm researching hand controls but don't know which are best. Any one have any experien...
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"Respect others' privacy when they are offline regardless why they are away from the boards."
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Because most people here, rightfully so, try desperately to stay positive, I'm warning you up front that this is NOT a positive vent. So if anybody says to themselves "I don't want this lady...
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hi
i live in the Uk and want to chat to people with my kind of MD, i dont know anyone in the UK with it!! well not in my area anyway.
would be great if i could chat to someone
thanks
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One day i decided to do situps. I did too many i think and not properly anyway i felt a really bad pain in the right side of my stomach. I couldnt get up in the morning because it hurt soo much. B...
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Hi, I'm new to this board, and was wondering if someone could tell me what type of doctor would diagnose MD? I've had some weird medical symptoms for the past year and in my quest for answers hav...
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Hey!
I was just reading a few of the other posts in which more people were encouraged to post to the message board, so here I am... I thought I would introduce myself, and I know I will sound...
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Hello,
I haven't been diagnosed as yet, but my doctor thinks I have some form of muscular dystrophy.
I have been told I have significantly weak quad muscles and as a result it seems my kn...
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What's the difference between muscular dystrophy and muscular atrophy?
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I find more and more that I miss all the things I used to do. I wonder sometimes if people REALLY stop to consider just how hard it is for us to give up these things. For me, the issue of climbing...
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Hi mark My son 2 yo had lately 26000 cpk but no other sysmptoms just started to walk lately but getting stronger now! we see it but we are very worried we go through all the tests now - only start...
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Hello Everyone! My name is Kelley and I'm 42, live in San Antonio. I've been with my husband almost 13 years and we have a beautiful 8 yo son. I began having problems walking, standing from a sitt...
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Hi,
I am new to this board and was wondering if anyone else has had this experience. I was born with Congenital MD. When I was young, til about 14, my MD was pretty bad. I crawled, I called...
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Hello all. I am new to this board. I am a caregiver for my husband. He has LGMD diagnosed when he was 38 and he is now 60. No family history. He also has diabetes. The problem is now he suffers f...
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Has anyone experiencing MD symptoms yourself found that some people in your life won't accept that you have MD? I am getting so frustrated with some people in my life that know my circumstances, ...
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I have Myotonic Muscular Dystrophy and have a lot of trouble opening jars. Does anybody have any ideas about how to make this easier? The things that keep the jar from slipping in your hands don...
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Hi,
i have two boys with Duchenne muscular dystrophy and this is my story,
I first noticed that my youngets little boy who is five was falling over alot and his legs seemed to give way fro...
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Hey guys,
I have miyoshi muscular dystrophy. I have done so much research. One thing I do questions if whether my variococele surgery had anything to do with muscular dystrophy. I know its all g...
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Hi all --
I don't post very much, but do read most of the posts. I'm a 40+ woman with MD of unknown origin. My symptoms are very similar to Mark's and I relate very well when he posts about ...
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