Hi,
Can someone please tell me if Myopathy is capable of lowering SHBG levels in men?
Thanks!
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because of levels of creatinine of 14,000. Could there be any other reason for these levels?
We will be taking him to Children's Hopsital in Phila tomorrow so they can determine what form of...
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I have had foot/calf and hand/lower arm pain for 2+ years. I cannot do any activity involving my hands or feet for a long periods of time. With increased use comes increased pain and "weaknes...
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I have been following neurology for 3 1/3 years...my legs and arms are weak, and I experience alot of pain especially in my legs....My neuro says it is a type of myopathy and that can mean muscul...
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Hi, I just posted on the thread below but I've been going through and reading different posts. Can I ask how old you are? It really hit me on a post you made about walking through grass, snow, sli...
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I was reading on the post "Undiagnosed Limb-Girdle MD" that you had a LGMD panel test run. How did you go about doing this?
Also, have you received any results yet??
Jess
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Hi my daughterinlaw and my grandchild have myotonic dystrophy. This is all new to us. We are having alot of difficulty with the daughterinlaw and how she is seeming to not understand how to prop...
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Hello to all of you!!!!!!!
As someone previously mentioned, I too am glad to have found this site and must say that I have found much more info on MD here than the web pages I visit through th...
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hi i m paptient of becker's muscular dystrophy.any body know when MAYO-029 is coming in market?
thanx
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My grandson is currently undergoing clinical trials using gene replacement therapy at the Columbus Children's Hospital. I am wondering if anyone out there has any information regarding the succes...
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I am curious to see how many of you have been given a genetic blood test to find out which specific form you have. My neuro says I have LGMD and never suggested a blood test to find out which exac...
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Hi all
Does any one have any information about Kearns-Sayre Syndrome? I have been clinically diagnosed with this condition but can find not much information on it. its a Mitochondrial Myopath...
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After genetic blood testing, I was just diagnosed with LGMD1C - with a "CAV3 sequence alteration". I'm 55 and my symptoms are still slight - I walk ok, but have atrophy of my shoulder m...
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Exciting developments using adult stem cells - positive results in dogs - human trials to possibly start in 2007! See Link:
[url]www.newscientist.com/article/mg19225780.143-stem-cells-reverse...
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First of all, I'm very grateful for the ADA (Americans with Disabilities Act). I'm conservative by nature when it comes to this subject. I don't believe people should be forced to build or modify ...
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We are having a hard time with our 8 year old son. He has DMD and epilepsy. His behavior has gotten worse and worse with little improvement over the past year. His former teacher was not very help...
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Hi
I am very happy I found this website, because I have been looking allover for more information about Miyoshi Myopathy.
I live in the Netherlands and I was diagnosed with this muscle disea...
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I for one am hopeful about the drug trials for MYO-029 - supposedly clinical trials will be finalized end of 2006. - if approved, this drug would re-build lost muscle, however it wouldn't correc...
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I have Facioscapulohumeral MD. I have been treating myself with a square wave generator based on Raymond Royal Rife's research. I have been using the machine for four months and have had no pain...
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I'm really curious about my father-in-laws condition. While he is sitting still he has twitches maybe 40 secs apart. And I've also noticed while he is sleeping its even worse. It's mainly on his l...
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posted about blood pressure but have another question...my daughter has been having "fever" with no other symtoms...low grade...she has had lots of problems with UTI's over the past year...
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my adult daughter has FSH dystrophy.she always has dramatic difference in her blood pressure in her right and left arm.....dr. mentioned there is "one" kind of MD in which this can be pr...
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Below are most facts relating to my health changes over past few years, after recent diagnosis of Mitochondrial Myopathy (which doctor says was aggrivatated by Crestor). Current doctors agree wit...
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I wanted to response to some of you in this closed thread, so I opened it up again.
My history: I was diagnosed at age 6 with either LGMD or Becker's, I am now 38.
I started using a cane proba...
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Hi,
Sorry this is kind of long.
For the past year I've experienced a lot of atrophy in my left quad muscle. There's a 10 cm difference between my right and left quad muscles. My calf muscl...
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