Has anyone tried the Ypsilon Toe-Off AFO's? I have ordered a pair to try, along with the regular Toe-Off. I am concerned about stability of the Ypsilon. Thanks
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hI eVERYONE,
I don't really know where to go or who to share with so i came to you guys. The right side of my sister's face was paralized for more than 20 years due to a .....well doctors are st...
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I've had a minor problem with double vision. Kind of a sensation that my eyes are going crossed without my consent. It's almost imperceptable, but creepy. It lasts 3-4 seconds a few times a day. Then ...
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Hi, I'm CJ's Mom, and he was diagnosed in Nov. 2005, with possible Duchenne MD, but after DNA testing and a muscle biopsy, he shows to have a type of LGMD. His neurologist was almost positive he had ...
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Please help and donate Used Printer cartridges to the Muscular Dystrophy family foundation your help is deeply appriciated We also need your old used used cell phones Please be kind and send them to
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Hello to everyone,
My girlfriend's mother gave birth to 4 child including my girlfriend 3 boys and her being the only girl. The oldest brother was born healthy, 2nd brother was born with Muscular...
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My brother died of Duchennes Muscular Dystrophy when I was six. Because I, as a female, could be a carrier of MD, I got tested at a university hospital back in the early 70's before having kids. The...
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Hi all. My mother-in-law has terribly swollen legs and they always seem to hurt her. They are also usually a reddish color. She is unable to lift them on her own in order to prop them up during the...
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I went to my doctor the other day and my blood work came back with a CK reading of 666 does anyone know what this may mean? It was tested twice and came back both times the same number. Please help ...
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I've was just recently dx'd with MS. If anyone should have the time, would you please tell me the differences between MS and MD. I was wondering if the 2 diseases share any of the same symptoms. Al...
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I've been looking for a chair that is portable, compact, lightweight and high enough that I can get out of it without the help of a crane. I found one and thought I'd share the info. It's a folding al...
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I know its important to keep fit and do some exercise, so what sort of things do people here do to keep fit, im just curious because i know too much exercise isn't good for people with MD could someon...
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Hello to all of you,
I am father to a 4 year old girl with congenital MD, type unknown yet. Mentally she is very good, physically she is weak and falls a lot. She is recieving physiotherapy.
Can...
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I'm a 44 year old white male, of English, French and other European descent. I have Limb-Girdle Muscular Dystrophy but the type remains undiagnosed after 4 years of extensive tests, reading, research ...
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I am in my early 30's and have started have painless muscle spasms throughout my body. They don't last long...just happen a few times every day...usually in my adomen, legs and fingers. Does anyone ...
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I am a 33yr old male. I have had no health issues up to now, nothing ever proven to be wrong with me. Over the past 2 weeks I have recently had visible muscle twitches in my arms mainly left bicep whi...
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Hi people! I'm new here and this is a really helpful site because I have some form of muscular dystrophy but i still haven't had a proper diagnosis but i dont know anyone the same as me so when i read...
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I am 25 yrs old female, when I was a child I used to get sick very often and unfortunatly, our doctors only knew how to inject penicilin to my buttocks, because of that I developed some lump in my bot...
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I feel like I have no right to complain. There are so many on this forum that are in pain and suffering, but I've been really bummed out lately. Because of my LGMD, I had to sell my motorcycle 3 years...
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its been awhile since i have been on i have md its called charcot marie tooth i was wondering if anyone that might read this has pain in there hands like waking up from falling asleep iam on pain meds...
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just as a curiousity what is exactly MD?
when my doct told me that i have osteoarthritis, i became shock, and everything happened quickly: i develop severe, excruciating muscle spasms at night, a...
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I have this odd thing that occurs every 1-2 months. In the middle of the night (this happens ONLY when im sleeping) i catch this EXCRUCIATINGLY painful cramp in my right leg, so bad that i wake up and...
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My daughter now 16, since birth, has had many problems. I sent her records to an Dr. for MD once and she said look in another direction. My daughter hadn't told me about her weakness in her knees an...
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Hello All,
My mum was diagnosed with Limb-Girdle Muscular Dystrophy at approximately the age of 24, a couple of years after i was born. However, there were evident symptoms from early on in her li...
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Hello All! I am a 26 year old female, who was diagnosed with Muscular Dystrophy (through a muscle biopsy) at the age of six. At that time, I was told that I have Limb-Girdle Muscular Dystrophy. How...
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