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Health Boards So chuffed with myself :)  
06:23 24-Jul-08   [Replies: 14, Views: 149]    By: Unnamed
The nurse came to see me at my place on Monday to start showing me how to inject myself. So last night is the first time I don't have someone watching what I'm doing and was nervous i'd actually ...
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Health Boards Me and my MS  
03:01 24-Jul-08   [Replies: 8, Views: 170]    By: Unnamed
I made my first post last night and was asked to tell my MS story. I will apologize now, because it is kind of a long one. Personally I cannot remember not being in pain. Not enough pain to ...
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Health Boards Stem Cells  
20:49 23-Jul-08   [Replies: 3, Views: 55]    By: Unnamed
I am heading off to another country for two and a half weeks for Stem Cell transfusions, I will let you know how it goes when I return. It is very expesive over $25,000. It will be Mid August when...
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Health Boards Looking for people who have dealt with MS 25+ years  
23:34 22-Jul-08   [Replies: 57, Views: 1532]    By: Unnamed
Hi everyone, I have had MS for over 25 years now. I was diagnosed before MRI's, and long before any of the drug therapies. I was recently put on Avonex, and am having a hard time both justifying...
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Health Boards Question on helping MS sufferer  
22:40 22-Jul-08   [Replies: 6, Views: 141]    By: Unnamed
Hi, I just joined this board and basically joined to find out if there is anything I can do to help my roomate out with his MS. I know his back is always an issue and he is very off balance with h...
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Health Boards Oh, these shots!  
09:49 22-Jul-08   [Replies: 9, Views: 170]    By: Unnamed
Twice now I've wasted an injection because I'm becoming absolutely phobic about them -- and I use the injector! I've never been afraid of needles -- but now I just dread the pain of that shot so ...
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Health Boards How to pay for Avonex?  
21:32 21-Jul-08   [Replies: 13, Views: 223]    By: Unnamed
Hello - I was just diagnosed with relapsing remitting MS last week. It's a relief in a way to finally know what this is that I'm dealing with. My neuro recommended that I start one of the 4...
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Health Boards Good Luck Nikki!  
21:10 21-Jul-08   [Replies: 27, Views: 437]    By: Unnamed
Hello Friends, If memory serves, and it may not, Nikki starts her new job tomorrow! Let's all send her happy, positive thoughts in return for everything she's done on this board! Nikki, ...
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Health Boards 4ap  
16:24 21-Jul-08   [Replies: 8, Views: 123]    By: Unnamed
Has anyone tried this, a friend who hs M.S. said that his Dr. perscrbed it to him and his wlking is improved. I see him 2 times a week I would have to agree with the Doctors assesment. ...
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Health Boards Copaxone & Hives or Bad Reactions  
12:11 21-Jul-08   [Replies: 59, Views: 998]    By: Unnamed
I injected this past Saturday and within minutes broke out in hives that generated heat and itched to no end. I also became flushed and felt like someone was sitting on my chest. I have been back ...
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Health Boards calcium supplements  
11:18 21-Jul-08   [Replies: 9, Views: 158]    By: Unnamed
My doc wants me to take Fosamax but after some reading I have alot of misgivings. Has anyone tried or does anyone know about a "natural" supplement called eZorb? Does anyone have a ...
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Health Boards New MS specialist continued  
23:34 20-Jul-08   [Replies: 30, Views: 443]    By: Unnamed
I started a new thread... I haven't come across that doctor, although I looked him up and he seems to specialize in epilepsy disorders. The MS doc told me that the LP would be useful. H...
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Health Boards More interesting mouth facts  
15:56 20-Jul-08   [Replies: 8, Views: 178]    By: Unnamed
Well it's no secret to the 'regulars' here that I have had mouth problems. Burning mouth mostly. I think I've also mentioned geographic tongue and fissured tongue. Both benign conditions I've expe...
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Health Boards MS - vision  
10:49 19-Jul-08   [Replies: 10, Views: 294]    By: Unnamed
My cousin is in hospital at the moment. She has lost her vision and the doctors think she may have a rare form of MS and it is called Derricks. Has anyone heard of this? ...
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Health Boards Stopped my Betaseron  
20:28 18-Jul-08   [Replies: 3, Views: 119]    By: Unnamed
OK. So my brain looks like salt and pepper. I finally saw my brain mri. I started to cry. Then I took my husband with me and he saw it too. OMG there are alot of lesions. The dr. gave my so...
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Health Boards Should I go see a neurologists?  
11:04 18-Jul-08   [Replies: 6, Views: 191]    By: Unnamed
Hi everyone, Hope you are all doing well. I've been hanging around here reading the posts for a while. I’m considering going to see a neurologist. Here’s what’s going on: In June of 2006...
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Health Boards Betaserone vs. Fingolomid (?)  
10:34 18-Jul-08   [Replies: 3, Views: 52]    By: Unnamed
Hi all. I've not been taking any DMD's for about 6 months now. I seem to be more sensitve to the heat now than any time in the past and my foot drop is getting worse. I have had some new issues...
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Health Boards Confused about drug choices...  
07:53 18-Jul-08   [Replies: 14, Views: 282]    By: Unnamed
I've been on copaxone for 10yrs - Just had an MRI and I have 20 new lesions. Now nuero wants to go on Tysbri (his first choice) or Avonex. I'm researching them both - but my head is spinning. B...
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Health Boards Dx and I am going nuts  
21:53 17-Jul-08   [Replies: 6, Views: 160]    By: Unnamed
I was told a couple years ago I had a spine cyst. It is clearly there on the MRI. My back is basically dissolving, but that is another board..... I just went through exhaustive MRIs of my brain to...
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Health Boards The first neurologist I saw  
20:05 17-Jul-08   [Replies: 16, Views: 232]    By: Unnamed
Well, some may remember that I had seen a neurologist in 2007, who walked me out of his office telling me that I was stressed, and to go home and sleep. I went with my coworkers who I have not...
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Health Boards Is this common with MS?  
17:40 17-Jul-08   [Replies: 8, Views: 199]    By: Unnamed
Sometimes as I'm falling asleep, my head will jerk sharply and I will feel dizzy. At times this happens throughout the night in my head and shoulders. It's different from a myoclonic jerk of the l...
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Health Boards Bearygood~ My Update  
12:43 17-Jul-08   [Replies: 11, Views: 236]    By: Unnamed
Hi Bearygood~ I'm doing really well and have healed very nicely. I have a prescription for physical therapy but I'm not even needing this, in my opinion. The dr's said the tethered cord surger...
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Health Boards Re: Medicaid  
10:09 17-Jul-08   [Replies: 7, Views: 158]    By: Unnamed
This is about Medicaid not Medicare. I applied for medicaid because I have MS. It isn't going away. I was told that I had too much income for medicaid but because I have children, I get a spend...
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Health Boards Ugh...  
21:27 16-Jul-08   [Replies: 26, Views: 352]    By: Unnamed
My head is starting to hurt. I hope it's not what I think it is. It's hard to decipher because I get bad headaches every day. It doesn't feel better when I lay down so Im thinking it's not a sp...
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Health Boards Eat cheats!  
19:32 16-Jul-08   [Replies: 14, Views: 231]    By: Unnamed
Ok, if you're like me, you are lazy and could care less about being a gourmet chef in the kitchen. I wanted to 'better' my eating, but not go hardcore Swank diet. So I decided to compromise. ...
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