what does muscle inflammation feels like
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Hi All,
I actually came to this site because of a "Lisfranc" foot injury. I decided to see if there was a Dermato board and I was surprised to read how many people are battling it. I...
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hello all,
I am brand new to the board but unfortunatly not brand new to the disease. I am now in the begining of my third outbreak. my first two took over 3 years to get over. according to my r...
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Hi I am 21 years old and trying to figure out what is wrong with me, I am currently being tested for dermatomyositis and have a few questions for those of you who have already been through this.
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I have high levels of CPK in my blood with muscle weakness in my legs and sever joint pain in my shoulders. I enjoy working out but lately I hardly feel like moving late afternoons.
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I was recently diagnosed with this & trying to learn as much as I can about it. So thought I would give it a shot here. Hopefully someone has some knowlegde or has experianced this. If so plea...
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Hi, I just had an EMG yesterday as part of a battery of tests for polymyositis. I was baffled because the neurologist did NOT test my thigh muscles at all, only inserted the electrode into the m...
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Hello,
My mom was diagnosed w/polymyositis i guess almost 5 yrs ago. She tried the ivg treatments, methotrexate, she was on prednisone, & several other drugs that did not seem to help. sh...
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Hello everyone: wondering if anyone had similar experience or can offer advise. For the past year have been feeling extreme weakening. Went to Rheumatologist last week and my enzymes came back ...
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Hi, I'm new and have been reading your posts for about a month now. My 59 yr old husband had DM diagnosed 13 yrs ago and had been in remission for 10 years. 8 weeks ago he came down with a respir...
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I am a 44 year old female, slightly overweight, but otherwise very healthy. This past September, I awoke to sore muscles in my upper arms and shoulders. By mid-October, I could not raise my arms...
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I developed the classic violet dermatomyositis rash on my hands about 4 months ago. I also have the 'shawl' rash on my upper chest and upper back. One dermatologist took a surface biopsy which cam...
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I had an appt with a new Rheumy today due to insurance change. She had all blood work and radiology reports (chest x ray). She said that my ANA levels (25,000) was a false positive, the positive...
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Hi, I have slight myopathy in my iliopsoas (sp?) muscles, with pain on my right side, though my CPK count is not elevated. I have been tested for metabolic disorders and they have come back negati...
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Hi i am 43 yr old female with autoimmune thyroid problems( hashi's)
I am currently seeing the eye doc because I have one eye (left) that is protruding 2mm more than the right. The pressure in b...
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Early on in PM is it common to have a short period of muscle weakness and shaking, then it get better for a short time where you don't notice it as much then it come back? I am not on meds just w...
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Hi all,
I was diagnosed with myositis last year through muscle biopsy. All other tests were negative. My CK was never elevated. EMG were normal ect..I havent had my CK levels checked in approx...
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symptoms why my voice sounds coarse, and I'm not sick...it's just my voice...people think that I have a cold. I have been like this for about 3 wks.
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Hello,
Is there anyone here with kidney involvement?
Thank you!
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does minoxidil benefit my hairline
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Hello
Does anyone here have cardiac involvement with Myositis? If so what kind of problem(s) do you have?
Thank you!
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Hello, I'm new to the boards and really concerned about my first bout with dermatomyostitis, which occured in Sept of last year. I'm really glad I've found a forum and support group because honest...
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I have a rash on the sides of 2 of my fingers on both hands. It starts off itching then i get little blisters that break open due to skin itching so bad. I have cracked skin aroung this area and r...
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prednisone - when do side effects go away
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Is that the same as creatine phosphokinase??
Thanks
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