I have seen four doctors in the past several years went through a variety of tests such as Lumbar Puncture (Spinal Tap), muscle biopsy, EEG, EMG, MRI's of brain and back, CT Scans of bac...
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I have had a CPK around 1,500 for the last year and a half. I also have mildly high AST and ALT liver test. I have swelling and pain in my left chest, neck and jaw. I went to a cardi...
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okay tonight this is really taking its tole on me, im so drained im not sure if this medicine is working on me. i feel like my whole body is not working, my core muscles are so weak, my ...
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i was diagnosed in october and have been on meds ever since, im just wondering if anyone has had these horrible muscle cramps like me. my hands literally lock up and my legs awake me cra...
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Hi everyone. I live in Belgium, Europe, and I have dermatomyositis. The reason I come to this board, is because here in Belgium, such a very small country in Europe, it's an extremely rare conditi...
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this is a very scarey disease, my doctors says its rare because i have symptons from pm and dm plus the lung issue. 12 days in the hospital to find out what was wrong. my muscles feel as if they a...
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what does methotrexate do to help polymyositis
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I post in the Sjogren's board about my wife and our struggle lately. I figured that I would post here, too, to see what people have to say. Here is the post:
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Hi!
After almost a year of many many tests, I have finally been diagnosed with lupus. However, I'm not totally convinced that its just lupus. I am now on prednisone and Plaquenil. My legs f...
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I am a 67 year old man who had a bad case of polymyositis 10 months ago. I responded well to prednisone (starting at 140 mg per day) and was down to 6.25 mg per day when I went on a strenuous hun...
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I have been diagnosed with inclusion body myositis - has your mom tried water therapy? They first thought I had polymyositis, but turned out it was not. They said that PM could be treated and ev...
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I developed the dermatomyositis skin rash about 13 months ago. Went for all the cancer scans and they were negative. Never developed any muscle problems either (thanks goodness). Went to see a not...
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I gave blood on 4/11/2008 & my CPK came back 138.0
Now, I just got back my bloodwork from 9/12/008 & it's 182.0 HIGH
I am on simvastatin for cholesterol & lovaza. Do these have an...
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ppppppppppppppkkk iiiiiiiiiiii
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I am looking for anyone else out there with my condition, as it seems to be not as common as other forms of myositis. I have considerable muscle weakness, esp in my legs and also trouble swallowi...
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I have systemic lupus, and I am on plaquenil and my lupus got much better. Starting a few months ago, my skin and muscles were sooo tender to the touch. All over my torso area, front and back, ...
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My husband has had dm for 3 years and now he has severe interstitial lung disease He has had recurring strep,staph and now a mycobacterium chelonea We are having a hard go of it and wonder...
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Hi
I am a 25 year old white male. For almost 4 months now I have been dealing with upper back pain. Mainly behind my shoudlers, under the neck. MRI's have been relatively inconclusive and I ha...
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I was diagnosed with dermatomyositis in 2006 and last monday I was diagnosed with lyme disease. I was wondering if anyone else has both of these conditions?
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have been taking lamisil tablets for large skin rash on body. can that cause my finger problem?
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what does muscle inflammation feels like
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Hi All,
I actually came to this site because of a "Lisfranc" foot injury. I decided to see if there was a Dermato board and I was surprised to read how many people are battling it. I...
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hello all,
I am brand new to the board but unfortunatly not brand new to the disease. I am now in the begining of my third outbreak. my first two took over 3 years to get over. according to my r...
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Hi I am 21 years old and trying to figure out what is wrong with me, I am currently being tested for dermatomyositis and have a few questions for those of you who have already been through this.
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I have high levels of CPK in my blood with muscle weakness in my legs and sever joint pain in my shoulders. I enjoy working out but lately I hardly feel like moving late afternoons.
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