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» All > Health & Medicine > Conditions & Diseases > Myositis [1 Forums][Track this Category]
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Health Boards High CPK levels  
14:32 7-Dec-07   [Replies: 0, Views: 590]    By: Unnamed
I have been on Vytorin 10/40 for the past two months and started getting muscle pains within the first month.The pains have intensified and my CPK result is 228.Previously I was on Lipitor and had...
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Health Boards Metabolic disorder, not autoimmune disease  
18:33 25-Nov-07   [Replies: 3, Views: 760]    By: Unnamed
I am into considering IBM as a metabolic disorder, not an "autoimmune disease". I was offline for about a year, but about two years ago had started using DMSO, a laboratory solvent whic...
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Health Boards Myofascial pain  
19:51 17-Nov-07   [Replies: 4, Views: 960]    By: Unnamed
I don't think this is the right place for me... but maybe someone can help or point me in the right direction.... have had chronic pain for the last 5 months. I am hoping someone will know wh...
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Health Boards what kind of Doctor to treat the VDRL  
08:17 5-Nov-07   [Replies: 0, Views: 381]    By: Unnamed
what kind of Doctor to treat the VDRL ...
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Health Boards Polymyositis and CK levels  
00:24 31-Oct-07   [Replies: 1, Views: 783]    By: Unnamed
Hi, Im a 20 year old male, and have recently been diagnosed with Polymyositis about 6 weeks ago. I noticed a big drop in muscle strength and had muscle weakness that was getting worse. My ...
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Health Boards Prednisone  
21:37 29-Oct-07   [Replies: 15, Views: 1854]    By: Unnamed
Hi, Will my tummy go back down after I get off prednisone? I never had a stomach in my life, always in good shape, but now with the autoimmone disease it's hard for me to even exercise..I'm tr...
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Health Boards Dermatomyositis - Lung Blood Clots  
20:56 12-Oct-07   [Replies: 7, Views: 820]    By: Unnamed
Anyone with DM have trouble with lung blood clots? I was in the hospital last week for 5 days due to multiple and massive clots in my lung. They did not find any in my legs....so they don't...
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Health Boards Focal Myositis  
11:17 5-Oct-07   [Replies: 0, Views: 536]    By: Unnamed
Is there anyone out there that has this diagnosis? ...
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Health Boards aciphex  
16:58 26-Sep-07   [Replies: 0, Views: 376]    By: Unnamed
When do side effects go away ...
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Health Boards feeling alone with DM  
15:24 23-Sep-07   [Replies: 4, Views: 699]    By: Unnamed
Would love to talk to people who have been diagnosed with DM. Family and friends are very supportive but it would be nice to share experiences with people who understand the uncertainty and the lo...
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Health Boards depression  
14:05 23-Sep-07   [Replies: 0, Views: 379]    By: Unnamed
was diagnosed with dermatomyositis about 1 year ago. Didn't realise how hard I would be hit by depression.Is anyone else suffering? Thought I could cope with most things but find I am struggling....
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Health Boards There is hope.  
17:11 14-Sep-07   [Replies: 0, Views: 493]    By: Unnamed
Just wanted to give everyone a little encouragement. My hubby was finally diagnosed with dermatomyositis last year. He lost use of his throat and had to have a feeding tube put in. Today after ...
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Health Boards DM and back pain  
11:00 13-Aug-07   [Replies: 1, Views: 512]    By: Unnamed
I was diagnoised 5 year ago with skin form of Lupus. After several years of problems and my hands kept getting worse I was sent to a dermatologist who specailized in Lupus. After one look at my ...
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Health Boards Products to help with standing/gripping, etc?  
08:56 7-Aug-07   [Replies: 1, Views: 533]    By: Unnamed
New to the board. My dad was diagnosed with IBM or polymyositis (the doctors continue to debate which one). Thankfully it is slow digression, but it is still difficult to watch him slowly get wo...
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Health Boards have you been diagnosed with myositis ossificans (or FOP)?  
22:43 5-Aug-07   [Replies: 0, Views: 472]    By: Unnamed
Hello, In 2003, I was misdiagnosed with eosinophilic fasciitis - an inflammation and hardening of the sheathing covering the muscles. Earlier this year, I was finally correctly diagnosed with ...
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Health Boards Just diagnosed  
05:10 26-Jul-07   [Replies: 10, Views: 2104]    By: Unnamed
I have just been diagnosed, through a muscle biopsy, with mild myopathy consistent with polymyositis. The neuro didn't seem concerned, just handed me a script for prednisone and said I needed to ...
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Health Boards Elevated CPK .. dould that be normal in some people?  
08:01 8-Jul-07   [Replies: 2, Views: 977]    By: Unnamed
To make a very long story short ... i started treatment of High Cholestrol (which runs in my family) nearly 12 yrs ago! Well over 300 and ratio's and triglyc were also out of whack. Started on Zoc...
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Health Boards renal patient with a 8000 cpk,, i need answers  
16:09 10-Jun-07   [Replies: 2, Views: 875]    By: Unnamed
hello every 1, i had a cpk of 8000, im down to 4200 now, i have problems with stairs and lifting. how long does it take to get back to climbing stars without using the rails? i have had myositis s...
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Health Boards Orbital Myositis  
13:22 6-Jun-07   [Replies: 5, Views: 1729]    By: Unnamed
I am greatful to have found this site but so sad the many out there suffering. For aprox 20 years, have had this dreadful monster "they" call OM orbital myositis. Is there anyone else wi...
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Health Boards The results of tests are all negative  
01:45 25-May-07   [Replies: 16, Views: 2468]    By: Unnamed
I have a daughter who is 17years old. She was tested on polymyositis. But the results of all the tests which included electroneuromyography came out negative. Yet she still has symtoms like mustle...
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Health Boards polymiositis -- need info  
17:09 11-Apr-07   [Replies: 0, Views: 1115]    By: Unnamed
I was wondering what meds you are on and if they are helping. I'm on predinisone and doesn't seem to be helping. I did the IVIG, the first treatment looked promising but the second i was off the...
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Health Boards Re: Questions & more questions  
02:21 10-Apr-07   [Replies: 0, Views: 854]    By: Unnamed
Firstly thank you to the responses to my first posting on this board it is much appreciated. I have some questions and since I will be seeing my rheumatologist on the 24th I want to get them a...
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Health Boards Natural Medicine  
18:37 9-Apr-07   [Replies: 1, Views: 468]    By: Unnamed
Has anyone ever seen a naturalist for their condition? I have been dealing with this diease for 3 years now and was in terrible shape. THe prednisone and all the other perscriptions to care for th...
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Health Boards alone in my disease  
17:56 7-Apr-07   [Replies: 6, Views: 1881]    By: Unnamed
Hi there all, well I've yet to see anyone with my problem. Even doctors are floored. I was diagnosed with chronic focal myositis. Just wondering if anyone out there has it too.Mine is rare it star...
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Health Boards Polymiositis  
11:32 4-Apr-07   [Replies: 1, Views: 1105]    By: Unnamed
I am a 35 yr old mother of 2. My symptons started in 2005 with tripping, followed by difficulty walking up stairs, then difficulty standing up and walking, now i can't walk at all and my arms and...
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