I have just been diagnosed, through a muscle biopsy, with mild myopathy consistent with polymyositis. The neuro didn't seem concerned, just handed me a script for prednisone and said I needed to ...
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To make a very long story short ... i started treatment of High Cholestrol (which runs in my family) nearly 12 yrs ago! Well over 300 and ratio's and triglyc were also out of whack. Started on Zoc...
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hello every 1, i had a cpk of 8000, im down to 4200 now, i have problems with stairs and lifting. how long does it take to get back to climbing stars without using the rails? i have had myositis s...
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I am greatful to have found this site but so sad the many out there suffering. For aprox 20 years, have had this dreadful monster "they" call OM orbital myositis. Is there anyone else wi...
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I have a daughter who is 17years old. She was tested on polymyositis. But the results of all the tests which included electroneuromyography came out negative. Yet she still has symtoms like mustle...
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I was wondering what meds you are on and if they are helping. I'm on predinisone and doesn't seem to be helping. I did the IVIG, the first treatment looked promising but the second i was off the...
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Firstly thank you to the responses to my first posting on this board it is much appreciated.
I have some questions and since I will be seeing my rheumatologist on the 24th I want to get them a...
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Has anyone ever seen a naturalist for their condition? I have been dealing with this diease for 3 years now and was in terrible shape. THe prednisone and all the other perscriptions to care for th...
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Hi there all, well I've yet to see anyone with my problem. Even doctors are floored. I was diagnosed with chronic focal myositis. Just wondering if anyone out there has it too.Mine is rare it star...
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I am a 35 yr old mother of 2. My symptons started in 2005 with tripping, followed by difficulty walking up stairs, then difficulty standing up and walking, now i can't walk at all and my arms and...
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I came to this board to read about osteoporosis but I'm reading lots on myositis and polymyositis, am I on the wrong board? If not, would someone please tell me how they are linked? I don't know ...
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Hi this is my first post to this board. So a bio is in order.
I have been recently been diagnosed with Polymyositis but I am not on any treatment right now. I have a follow up appointment wi...
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this is my first time post. i am not a good speller or good with the computer but i do have dermatomyositis and a need to explain my self with people who understand what i am going through. it is ...
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Hi everyone,
I am new to this forum. My name is Tara and I am a 22 yr old girl who just graduated from college. I have had some issues for about 2 years as of April that no specialist has been a...
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My friend has both conditions and is looking for a diet that will help with the dermatomyosititis flare ups. Anyone have any suggestions?
sully02
...
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Were any of you misdiagnosed?
I'm trying to avoid the trap of self-diagnosis but I found this illness earlier tonight and tears rolled out of my eyes. I couldn't believe it. I let go of 11 y...
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A huge thank you to everyone who took the time to reply to my post back in May of 2005. After I posted that, I lost track of this website and didn't get back to it until just recently. I realize a...
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Just wondering how your daughter is doing. Did they ever confirm diagnoses? Start her on meds? Anything? Hope all is well.
...
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Hi guys, I am new to this but I was diagnosed with dermatomyositis in Nov. of 2001. I have not been able to get this disease under control. At the time I am having an aggressive attack and like so...
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My husbands story is like many who suffer from dermatomyosits, it took a long time for a diagnosis. He was finally diagnosed with an ER visit. My question though has anyone ever lost the ability...
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Hello im a 22 y/o male and I have been battling this disease since 2003 it first started when I was graduating highschool. I noticed the weakness around 3 months into having higher cpks it started...
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I was diagnoised 4 hours agao with Lupus (skin). After several years with a dermatologist and nothing really making the rash and bumps on my hands go away they sent me to a RA doctor. All of blo...
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I have just gotten the results again from another RA. He says the EMG & NCV came back negative. Also the bloodwork they did at the same time all were negative. When I told him I was getting fr...
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Sorry that you are not to good at the moment. My daughter was 13 years old when she was rushed to hospital. I now suppect that she was developing this for quite sometime. Doc put it down to gro...
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Hello,
This is the first time I am posting here. I have been having muscle and joint pain for about 3 to 4 months. When I stop and think back to some of the symptons I have had, I wonder if thi...
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