I have had lupus since 1994 and polymyositis since 1997. My doctor is wanting me to start Imuran. My CPK is not extremely high lately but stays elevated most of the time and is cause for painful...
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About four weeks ago I had a CPK of 1100 in the hospital. I work out a lot, lift heavy weights, etc. etc. Since then, my CPK has dropped down to 60 on its own simply with flushing with IV fluids...
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I have been on 80 mg of prednisone for dermatomyositis and have recently been reduced to 40 mg. At what point do some of the side effects (sleeping difficulty, facial swelling, excessive hair gro...
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Hello
First post for me.
My GP is sending me to a rheumy next week. The GP mentioned this poly thing as a possibility, he thinks it is more likely than Lupus.
I have shocking muscle a...
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Hello folks- it's been a long long time for me being diagnosed, and I'm still waiting on Docs to determine what I've got. I have a few questions about symptoms.
Do you
1: have muscle burning...
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I was diagnosed the end of August with dermatomyositis. I have been on 80 mg of Prednisone since and started 50 mg of Imuran 10 days ago. Since starting the Imuran I have had significant swellin...
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I was researching polymyositis on the internet and came across 2 articles by people suffering with this disease, they were stating how they were taking high doses of antibiotics & were fe...
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While gathering my medical records to have my VA rating re-evaluated, I came across one from 1997. In it, the DO I was seeing had written on every visit a dx of cervical and dorsal myositis. Yet...
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Today I woke up and felt like I had been beat up in the middle of the night. From the base of my skull all the way down to my hips I feel like I am on fire. It feels very inflammed and sensitive t...
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Hello. Can anyone tell me if intense muscle weakness is another sign of myositis? I have extreme weakness in my legs (especially my thighs). It has started to migrate to my arms and now with just ...
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does anyone know if there is a research center that specializes in polymyositis??
...
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I have been on prednisone now for about 21/2 months and now on higher doses. I have now developed this swelling place on my neck (a doc friend says it is due to the high prednisone). I hurts and m...
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I would like to know how many people with Myosits are also hypoglycemia ?
...
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Hi, My name is Michael, Ill be 19 in August. I was dyignosed with dermatomysitis Febuary '05. I had to have a feeding tube in because my muscles in my throat went weak and i lost 75 pounds in 2 mo...
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I have been through the ringer with docs and tests and such. I don't know what is going on. I have a VERY high ANA 1:1280. I have severe muscle weakness, tendinitis in both shoulders (today I can'...
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I am a 36 yo female that was just diagnosed with Polymyositis last month. My doctor sent me to the hospital with a CPK level of 39,000. I spent a week in there on IV Fluids and high doses of Predn...
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I have been dealing with this disease for the last four years. I had a muscle biopsy to confirm that I have Polymyositis. I have been taking predisone and metho injections for the last four y...
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my mom got PM in 1992. she had a introvienious cure called VIG. Ihope it helps you. she is now 55 years old and doing well for what she went through.
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My mom is 55 yrs old. She was diagnosed with polymyositis 3 yrs ago.
She was on Methotrexate for 2 1/2 yrs. The whole time she took this medication it was no help her enzyme levels have reached ...
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Do any of you guys know how long the prednisone side effects take to wear off? Im only 17 and the pred. really changed my body. This is an issue for me because i am very self conscious.
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I know many autoimmune diseases follow a course of flare-ups and periodic remissions. Is it possible for PM to follow a similar path?
Thanks!
Kelly...
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Anyone with a child that has dermatomyositis?...
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I would like make some connections with others who are suffering with DM/PM....
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I hope I can find somebody with DM. My dr. was very concerned the 1st 2 times I saw him, but yesterday, he said because my muscle enzyme tests are okay, I don't have DM-just a rash. The rash is now un...
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Hello! I've been wondering for two and a half years what is wrong with me, and today my doctor finally said he thinks I may have myositis. I don't know what that is, really. Can you explain:
1)...
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