Please help! I am on the verge of a nervous breakdown. I was getting rescue instills for about 6 weeks of elmiron, sodium bicarb, and lidocaine, and last week when I went back for my 6th one, my...
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Hi,
maybe it sounds a strange question. Since my IC symptoms have worsen, I have discomfort also in touching the exernal area, my clitoris.
When I had the visit with the urologist, he actu...
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Hi all,
When last week I had the revelation - my suffering is due to IC - I could understand soooooooo many things.
The first time I had a complete intercourse I was 19. I couldn't basical...
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I have been taking elmiron for about 9 months and have the hardest time trying to get it taken three times a day.
It seems that if I waite to late at night I am up in the bathroom to many time...
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Hello,
My name is Robin from Austin, TX, and I am 26 yrs old. All my life I have suffered from nocturia and incontinence, I wake up 3-4x's per nite. As of last year though, my symptoms started...
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I get very frequently nasty ulcers in my mouth, they are quite painful... sometimes on the tongue too.
Is this a common symptom in IC patients?
...
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hi there,
I haven't actually been diagnosised yet (cystoscopy in 2 weeks), but my urologist is pretty sure that I have IC.
I did some research based on what my doctor said: "No it's n...
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I have had lower back pain for some time - especially in my lower left hip around my butt (sorry). I try to get regular massages and the girl that does my massages tells me my hips are out of ali...
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During my trip to Spain this summer, my roommate & I got up early to watch the news coverage of the running of the bulls in Pamplona. I still don't quite get why people do this, but it was a ...
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The first time I watched this, I thought it was rather odd, but the second time I really liked it & what I liked was how so many people were willing to step out of their daily lives to dance f...
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So... what do you put on meat that you can tolerate? I used to eat meatballs with marinara... no longer. Ranch, ketchup, mayo... no longer. What can you do when cooking meat to make it juicy/mo...
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I am upset and do not know where to post this.
OMG! Seriously, I'm going to kill her. She keeps calling me a
druggie! Wow. I have explained to her that each of my meds is
prescription. I a...
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I love seeing anyone of you, who post, there is a picture to the name, I have a picture someone took two days ago, he sent it to me (the babies dad) and I don't know how to get it on here, would l...
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Hello All. I am having my first rescue instillation done this week. I was wondering if the mixture of: kenalog,marcaine,heparin,Gentamicin, and Sodium Bicarbonate was a mixture that others have us...
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I think my intestinal pain was from the oxybutinin but it helps my bladder so i was wondering what people thought of the patch (oxytrol) compared with the pill (oxybutinin/ditropan) and if they ju...
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Had my hydro today - early this morning everything went well. I went home and slept for a few hours - now I'm up and about. When I got there this morning, a few of the nurses said to me "I ...
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I had Botox 4 days ago and was told that I could have 3-5 days of flare and then in 7-10 days I would feel benefits. I am worried. I felt worse the first few days and despite the pain walked aroun...
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While getting dressed this morning I decided to stop to take off the band-aids on my left leg where one of the children had bounced off it a few days earlier. Went back to getting dressed and I co...
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Can it cause urine retention? Doesn't seem like it could, but wasn't sure.
...
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Is it possible to have pfd and not have IC.. I have been on elmiron for 3 weeks... When I saw the Uro a week ago he said he wanted to do a hydro distension... I think he has done things a bit bac...
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Hi all,
It's been nearly 5 months that I suffer from cystitis, and I had for the first time an answer from a doctor only last week (He says I've got IC).
I also have figured out just latel...
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Hi,
This is what I do when I'm in panick for too much pain... I guess it helps to relax your muscles and gives you a nice warm sensation.
The pain usually improves a lot, at least for me.
...
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I am not ready at this time per my team of md's. However in my mind not sure my md's uro will let me but someday I would like to go back to work if I can find a lighter job if you will. Has anyone...
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Just wondering if others drink peppermint and how they do?
thanks
...
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OMG. I am freaking out!
My pain clinic just got their license suspended! I am SOOOOOO screwed because there is NOTHING else around here. There was ONE other pain clinic, but that one was shut ...
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